I dedicate this piece to everyone who has lost a mother. I see you. One of the by-products of losing your mom too soon is a hunger. A hunger for what should have been. A hunger for what could have been. A hunger to simply pick up the phone to call her. A hunger for her recipes and ironing sheets and houseplant skills. A hunger to know more—more of her, more of who I was Continue Reading
Who is Ryan?
I shared this one year ago on social media and thought since once again it is DAY 1 of PWS (Prader-Willi syndrome) Awareness Month, I would share here. They stopped me in my tracks.Her words. About her son with autism.“I just want to allow him the chance to become who he is...”In almost 16 years, I have never thought of this. I have never dreamed of this. I have never pondered this. I have Continue Reading
LESSONS FROM MAKING TWICE-BAKED POTATOES…ON EASTER 2020
About once or twice a year, I embark on making twice-baked potatoes. My family does not really looove potatoes, but they do like TBP’s. Maybe it’s because it is a recipe my beloved mother-in-law, Sally, used to make. Perhaps they can feel her love come through on some deep subconscious level. You would think that during this pandemic with crazy grocery store habits and changes, I would have Continue Reading
In Between the Blog Posts
Hi! My name is Jessica Patay and I am a delinquent, infrequent blogger. In fact, I almost took it down from my Instagram profile because if I don’t blog for over a year (or more!) do I still have the audacity to call myself a Blogger? After NOT posting for 20 months, I sat down to write my thoughts on this quarantine and the massive impact on special needs families. (And, of Continue Reading
Isolation on Steroids: The COVID-19 Quarantine & Special Needs
Imagine you are the captain of a sports team. The season started off rusty, but you led, you communicated, you encouraged, you appreciated each team member. You worked together better and better and you had a good rhythm. You were interdependent in a positive and successful way. You achieved milestones and victories!! You celebrated! And now, it is the playoffs. As the captain, you are Continue Reading
The Phonecall
I received a call from an unknown number. It was a young gal at Peninsula High calling around 8pm. She said, “Hi, This is Aidynn Oschman, and I am Ryan’s buddy for the Freshmen Link Crew. Freshmen Orientation is Wednesday from 9-12 and Ryan will be in my small group.” My son, Luke, and Aidynn were friends in middle school and I thought may still be friends. I knew she was probably familiar Continue Reading
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