I was FINE FINE FINE until the slideshow began. And then the famous Pomp and Circumstance music started rolling and my lips started quivering. All the 5th graders marched into the MPR, all dressed up with their homemade-Pinterest-worthy mortarboard graduation hats on heads, purple leis around their necks. Shining bright. And I kept smiling on the outside with my bright lipstick smile but Continue Reading
Dear Mom
Dear Mom, No one warned me when I was pregnant—that I may be a mother…without my mother. It’s not anything I began to imagine amidst my growing belly, baby showers, and nesting a nursery. I was barely into motherhood when I lost you to your lung cancer. All those decades of smoking. You were diagnosed and gone in the length of a summer. Our last summer. At the time I had my toddler, Continue Reading
I Always Think About Those Moms
With Mothers’ Day approaching fast, my heart beats fast for THOSE moms. You know. THOSE moms. The ones who don’t really get a Mother's Day celebration. The ones who never-ever get a mommy break. They don’t even know what that means. The ones who live across the world and hide with their children so as not to be kidnapped, raped, or sold into sex slavery. The ones who live on the Continue Reading
A Mother’s Front Porch Prayer
THEY SAY IN THEY MAGAZINE THAT "RE-ENTRY IS A WITCH." (or other choice words) Re-entering family life and the reality of the day to day grind after time off or vacation can be difficult. For me, even after a night off with girlfriends, or a full day off from mothering, I can have re-entry issues. Because... I NEVER KNOW when I walk through the door what awaits me. This weekend Chris Continue Reading
To Share or Not to Share?
Privacy and self-protection lead to isolation. Transparency and honesty lead to connection, community, and love. Yet, it is not so black and white when you find out your child is different, or disabled, or diagnosed with SOMETHING. Do you tell others or do you not? When Ryan was first diagnosed with PWS at 5 weeks old, our knee-jerk reaction was to keep it to ourselves. Maybe tell Continue Reading
The Night We Told Ryan He Has Prader-Willi Syndrome
When is it the right time? At what age? At what cognitive level? Will he even understand? Will it make him more anxious? (Because EVERYTHING does.) Will he just perseverate on it and talk about it over and over and over? Or will it bring relief—as in “oh, now I understand why I talk about food all the time…” It was a Friday night in November. Luke, our oldest, was celebrating Continue Reading
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