I survived the first week of summer break with a smile. Barely. Only 10 more weeks, but no one else in the Patay household is counting. But me, I admit. Deep breaths. Don’t get me wrong. I welcome the respite from homework, projects, meetings, volunteering, packing lunches, and staying on top of endless papers that come home. My in-basket is sooo happy to be less full. I have loved a week Continue Reading
So…About Blogging on Mother’s Day
So I write this blog about life as a mom. And as a special needs mom, too. Duh…. And its 10:56 PM on Mother’s Day and I have yet to write something as beautiful as Ann Voskamp or witty as Anne Lamott, or just about Ann Young, my dear sweet mother, who passed away in 2004. But I can’t. And its a little ironic. BECAUSE I WRITE A BLOG FOR MOMS. So I SHOULD BE ABLE TO DO THIS TODAY. Instead, I Continue Reading
When Tears Are More Than Tears
Just as laughter can be rich-belly-laughter, so can tears come in a way that you know they are from deep within one’s soul. Kate had those kind of tears a few mornings ago. And I had to pull the minivan off the road just to hug her and hold her. We were on our way to drop Luke off at middle school. Which is always a feat to get the three of them out the door that early. Not more than a minute Continue Reading
Wanderlust
I could run away today. I told you that I love being a mother. And I told you that there are days that I don’t. I do sometimes fantasize what it would be like to just travel, write, have some adventures (if I were truly that brave) and somehow make money to support myself. To be my age, with life experience, wisdom gained, and little responsibility. Not that I want to be IRRESPONSIBLE. Not Continue Reading
A Curved Spine & A Curved Heart
Ryan has scoliosis, and I have another kind of OSIS. Ryan has had it since he was a baby. It’s a “C” curve to his left side. His OT and I noticed it as Ryan would lean to one side in his infant seat. Today, its not obvious to others unless in a bathing suit and swim shirt. You can see him lean and favor one side. And with his shirt off, well, it just makes me sad. He was first braced at a Continue Reading
Confession
Its TRUTH-TIME. I will share 10 ways I have blown it as a PWS mom. (I blow it as a “regular mom” all the time, too, by the way.) We, as parents and caregivers of a child or adult child with Prader-Willi syndrome, are all trying our best to provide what our special peeps need. We read, we research, we go to endless appointments, we read newsletters like this, we attend behavior training Continue Reading
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