It’s not something I am proud of. It’s not something I ever wanted to model in front of my children. But I do lie. I have lied. I will continue to, I’m sure of it. Because, it is part of surviving this life with Ryan and Prader-Willi syndrome. I have even encouraged Luke and Kate to lie, and be sneaky. It’s all to protect Ryan from his anxiety--getting triggered and having Continue Reading
And Today She Would Have Been 80
“Now that’s old,” my sister Julie said as we chatted a few days ago in anticipation of our mom’s would-be birthday, September 1st. Would Have Been. It’s still hard to believe it’s been 10 years (on September 12th) since I lost my mom. Since five of us—Steve, Jim, Julie, Jennifer, and I—lost our mom. Although the pain, the grief, the intense FEELING OF IT ALL has passed, I still wish she Continue Reading
7 Things I Learned From Going to Amusement Parks
1). Don’t ever wear WHITE clothes. Just don’t. Even though I am out of the sticky-gooey-small-fingers-all-over-me-stage, I should have known better. It’s the law of motherhood. Either they spill or I spill, just simply cause I have little people nearby. Plus if all seats are taken and you are in need of sitting SOMEWHERE, ANYWHERE, you just can’t, in white shorts, that Continue Reading
When Compassion Collides
That breaking moment. With the ugly crying. In front of your children. I was sitting at the computer trying to complete some work tasks in order to get to Family Movie Time. The kids were sitting on the couch in anticipation. I was anticipating the down time with them. Actually just sitting, being, snuggling in even a bit. But then... Ryan was going over his summer calendar of dates Continue Reading
“Bubble Wubble” IS the Answer for All Crazed Moms
He's the child who brings laughter and lightness to our family. He's funny. He's witty. In fact he has perfect comedic timing. I'm NOT biased, even if I am the Mother-Who-Borned-Him as he says. And he's stumbled upon the key for all nagging, grumpy, PMS-y, stressed, tired or irritable moms. Maybe just maybe last weekend I was all of that. Just a weensy bit. My poor fam. If you know me, Continue Reading
On Eating Whatever & Whenever
We just complete a FIRST in the Patay Family. We had our very First Family Vacation Without Ryan. Without PWS. Without a schedule. Without a food schedule. Without 1000 questions per day. Without "what's next ?" and "what if...?" and all his bless-ed anxiety. And it was weird and surreal and calmer and easier, and yet not having him with us was a little palpable. We were Continue Reading
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