He's the child who brings laughter and lightness to our family. He's funny. He's witty. In fact he has perfect comedic timing. I'm NOT biased, even if I am the Mother-Who-Borned-Him as he says. And he's stumbled upon the key for all nagging, grumpy, PMS-y, stressed, tired or irritable moms. Maybe just maybe last weekend I was all of that. Just a weensy bit. My poor fam. If you know me, Continue Reading
On Eating Whatever & Whenever
We just complete a FIRST in the Patay Family. We had our very First Family Vacation Without Ryan. Without PWS. Without a schedule. Without a food schedule. Without 1000 questions per day. Without "what's next ?" and "what if...?" and all his bless-ed anxiety. And it was weird and surreal and calmer and easier, and yet not having him with us was a little palpable. We were Continue Reading
First Full Day of Summer And Uh…
I am off to a brilliant beginning! No really. I’ve already had a “mommie dearest” moment. No need to repeat but it involved a box of Fruit Loops and a trash can. Someone will be in therapy for that one. I’m a lame mom because I won’t let kids put spray paint in toy water guns and shoot it at each other. I’m so conservative and square. My kids are destitute for no joyful adventures Continue Reading
Bedheads v. Bedtimes
I am absolutely, positively, without a doubt, a “MORNING person.” How I love to wake early before everyone and taste that euphoric first sip of Coffee Bean single serve coffee. I can smell it and taste it. Ahhhh…. And I love my Katie-Kate with her long, tousled hair and her pat-pat across the hard wood floors to me with her fuzzy blanket cocooning her. I know it’s her without even looking up Continue Reading
The 10 Things NOT to Say to a Parent of a Child with Prader-Willi syndrome
We (special needs parents) have all been annoyed, hurt, or angered by someone’s comments to us about our child. It’s usually someone well-meaning, and just absolutely unaware of Prader-Willi syndrome, or what it’s like to have a disabled child. We cannot expect others to understand or to know what to say or not to say. We must give them some grace. However, with that being said, I thought I would Continue Reading
The Naked Mom
I am on this Motherhood journey. So are you. It’s a wilderness sometimes. It’s full of scary animals clawing at you. It is our own unchartered territory. And yet, it is also full of wonder and joy. As in seeing a child’s first experience of bubbles and puppies and oceans. We travel together and separate in our unique ways of mothering, loving, caring, giving, teaching, and protecting our Continue Reading
Refresh & Reset
I am overjoyed-giddy to share with you, faithful readers, my brand new blog website! After two plus years in this blogging adventure, it was time to evaluate where I have been and where I am going. Given that I am not an expert runner and my previous blog did not end up as a true “mother-runner blog,” it was time for a remodel. It’s been a long time coming, and a necessary refresh on what I am Continue Reading
The Million Definitions of a Mom
Sherpa of diaper bags, binkys, and strollers Sleep expert Milk factory Baby food maker Bottle cleaner Soother of colicky babies Toileting trainer Rewarder of potty-ing performances Hand holder Safety monitor Assembler of all toys and kid gadgets ****** Mama Bear Advocate Kisser of boo-boos Bandaid opener Tooth-flosser and dirty foot Continue Reading
The Feel of Her Hand
It doesn't happen often. She's eight ("and a half, Mom") now, and growing more independent. Well, as independent as 8-year-olds go. But when it does, it halts me. The feel of her hand in mine. The little soft fingers wrapped around my wrinkled adult hand. Innocence and purity secure in my protection and love. I'm not good at living in the moment, being emotionally present at all Continue Reading
Pretty On The Outside But…
Don’t judge us by our Christmas card. We look pretty perfect. Like the quintessential all-American family. Don’t we? The only thing missing in the picture is our adorable, chocolate labradoodle, Gracie, with a Christmas bandana around her neck. It’s a great picture, if I do-so-narcissistically-say-so myself, as the mother in this photogenic crew. BUT... Just because I know how to Continue Reading
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