When you have a child with special needs, you are ON at all times.Or, it certainly feels that way. Often. When you have a child with Prader-Willi syndrome (“PWS”), because of the high food drive, called hyperphagia, you have to be structured, consistent and vigilant, about the food schedule, food security, and keeping everything locked. Not leaving any food out. Avoiding Continue Reading
The Air He Breathes
It’s his very own. It’s not like yours and mine. He thinks about it. ALL the time. Our air gives us life and breath and oxygen and growth. His air could lead to death. In Prader-Willi syndrome, at some point in childhood, hyperphagia sets in. Hyperphagia is experienced as a chronic hunger, or never feeling full. It’s an obsession with food, which leads to excessive overeating, and a Continue Reading