Just as laughter can be rich-belly-laughter, so can tears come in a way that you know they are from deep within one’s soul. Kate had those kind of tears a few mornings ago. And I had to pull the minivan off the road just to hug her and hold her. We were on our way to drop Luke off at middle school. Which is always a feat to get the three of them out the door that early. Not more than a minute Continue Reading
A Curved Spine & A Curved Heart
Ryan has scoliosis, and I have another kind of OSIS. Ryan has had it since he was a baby. It’s a “C” curve to his left side. His OT and I noticed it as Ryan would lean to one side in his infant seat. Today, its not obvious to others unless in a bathing suit and swim shirt. You can see him lean and favor one side. And with his shirt off, well, it just makes me sad. He was first braced at a Continue Reading
Confession
Its TRUTH-TIME. I will share 10 ways I have blown it as a PWS mom. (I blow it as a “regular mom” all the time, too, by the way.) We, as parents and caregivers of a child or adult child with Prader-Willi syndrome, are all trying our best to provide what our special peeps need. We read, we research, we go to endless appointments, we read newsletters like this, we attend behavior training Continue Reading
Moses Makes Great Dinners In Heaven
Some years it hits me. Some years it does not. That post-Christmas blah. The let-down. On December 26th. Or even sometimes RIGHT after the Christmas morning of fun and frenzy and children’s delights are all over. Even though I don’t believe in Santa Clause or any Christmas magic per se, I have realized my adult self still has this longing and expectation at Christmastime. That somehow a Continue Reading
Just Unwrap
A dear friend of mine says to her “special” daughter every morning as she looks into her chocolate eyes, “You are a gift.” It’s her daily mantra. Before the cares of the world set in, before the grind begins, before any reminders of the challenging journey she is on, before. She has chosen to remind herself, despite the hardships of having a disabled child, that her daughter is a gift. Continue Reading
Moms’ Night Out Junkie
I’m a group-y kind of girl. I always have been. No, not that kind. I love the village of my girlfriends that I get to live in from time to time. Were it not for my girlfriends or fellow mom friends, I would not be as validated, or as encouraged, as I need to be. In fact, you probably would not want to be around me. Because my true girlfriends challenge me to be the best me, at the same time Continue Reading
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