With Mothers’ Day approaching fast, my heart beats fast for THOSE moms. You know. THOSE moms. The ones who don’t really get a Mother's Day celebration. The ones who never-ever get a mommy break. They don’t even know what that means. The ones who live across the world and hide with their children so as not to be kidnapped, raped, or sold into sex slavery. The ones who live on the Continue Reading
Let’s Not Drink the Parenting-A-Teenager-Is-Awful Kool-Aid
It’s the weekend before turning in Freshman Class Schedule for our son, Luke. Parent Orientation was a few days ago. My firstborn is going to HIGH SCHOOL. Crazy soon. How could that be??? I still remember everything about high school. More than I even want to remember. I can time travel back in an instant when I listen to my beloved 80’s music. I remember my first real kiss on the dance Continue Reading
The Air He Breathes
It’s his very own. It’s not like yours and mine. He thinks about it. ALL the time. Our air gives us life and breath and oxygen and growth. His air could lead to death. In Prader-Willi syndrome, at some point in childhood, hyperphagia sets in. Hyperphagia is experienced as a chronic hunger, or never feeling full. It’s an obsession with food, which leads to excessive overeating, and a Continue Reading
I Would Die of Parental Happiness If…
These range from silly to sappy to serious, and some even totally unrealistic, BUT---a mama can wish and pray and hope. Because that is what we do. I would truly die of parental happiness if: My daughter would wake me with hot coffee every morning. And then get in bed with me to snuggle. My kids would learn to use a towel more than ONCE. The laundry piles up so fast, and right Continue Reading
The Very Horrible, Terrible, Amazing Mom
I am two different people. I'm sweet-mom, doing the mothering duties, roles, and wearing 12 hats with a smile on my face. I'm just humming along beautifully like a productive little dwarf whistling while I work. I'm in love with my husband, kids, dog and cat, and life in general. I'm nice. Nice mom just doing the nice mundane stuff. And there's the other me. I'm grumpy-mom who is so Continue Reading
12 Things I Would Say to a Mother of a Newly Diagnosed Baby with Prader-Willi Syndrome
1). Congratulations on the birth of your beautiful baby boy (or girl)!! Your child has made you a mother and has created your first dose of family life. (Or if this baby is a 2nd or 3rd child, I'd say), Your family has grown to contain more love, joy…and diapers! 2). You are NOT alone. You have a community of mothers, parents, families, and professionals through your local Prader-Willi Continue Reading
- « Previous Page
- 1
- 2
- 3
- 4
- 5
- 6
- …
- 12
- Next Page »