"Tonight's the night the world begins again..." so said wise sages The Goo Goo Dolls, but it fits. It is New Year's Eve 2014 and we are about to ring in 2015 with champagne, wine, craft brews, Moscow Mules, Smart water, or juice boxes (or all of the above). You may be wearing glitter. OR you may be wearing UGGs and pajamas happily like me. Whatever your costume of choice is tonight, the Continue Reading
12 Things I Would Say to a Mother of a Newly Diagnosed Baby with Prader-Willi Syndrome
1). Congratulations on the birth of your beautiful baby boy (or girl)!! Your child has made you a mother and has created your first dose of family life. (Or if this baby is a 2nd or 3rd child, I'd say), Your family has grown to contain more love, joy…and diapers! 2). You are NOT alone. You have a community of mothers, parents, families, and professionals through your local Prader-Willi Continue Reading