Every morning THE VERY FIRST THING Ryan says to me is, “WHEN can I have my breakfast?” He’s been doing this for about a year or so. Very Prader-Willi-ish of him. At some point in childhood, in PWS, at age 2, 3, 4, or later, kids begin to have an obsession with food. Their brain-wiring causes them to focus, focus, focus on food. In addition to that, they have no satiety Continue Reading
A Mother’s Spring Break Prayer
Dear God, With 9 ½ long days ahead of me, I pray for grace To always, always Keep a smile on my face. As we road trip to Somewhere Fun, After hours and hours in the car… May I not detest everyone. May we truly make beautiful memories Forever etched in our minds, And may our words to one another be kind. May my children please NOT Continue Reading
Dear Whomever Marries Luke and Kate
Dear Whomever Marries Luke and Kate, You have been given a sacred and very prepared spouse. Each of them is overqualified and overjoyed to share life’s adventures with you. Any adventures. They can roll with what life hands you along the way. You see, for decades, they have loved and lived with their disabled brother. They have been Ryan’s cheerleaders and champions. His Continue Reading