I survived the first week of summer break with a smile. Barely. Only 10 more weeks, but no one else in the Patay household is counting. But me, I admit. Deep breaths. Don’t get me wrong. I welcome the respite from homework, projects, meetings, volunteering, packing lunches, and staying on top of endless papers that come home. My in-basket is sooo happy to be less full. I have loved a week Continue Reading
So…About Blogging on Mother’s Day
So I write this blog about life as a mom. And as a special needs mom, too. Duh…. And its 10:56 PM on Mother’s Day and I have yet to write something as beautiful as Ann Voskamp or witty as Anne Lamott, or just about Ann Young, my dear sweet mother, who passed away in 2004. But I can’t. And its a little ironic. BECAUSE I WRITE A BLOG FOR MOMS. So I SHOULD BE ABLE TO DO THIS TODAY. Instead, I Continue Reading
When Tears Are More Than Tears
Just as laughter can be rich-belly-laughter, so can tears come in a way that you know they are from deep within one’s soul. Kate had those kind of tears a few mornings ago. And I had to pull the minivan off the road just to hug her and hold her. We were on our way to drop Luke off at middle school. Which is always a feat to get the three of them out the door that early. Not more than a minute Continue Reading
Wanderlust
I could run away today. I told you that I love being a mother. And I told you that there are days that I don’t. I do sometimes fantasize what it would be like to just travel, write, have some adventures (if I were truly that brave) and somehow make money to support myself. To be my age, with life experience, wisdom gained, and little responsibility. Not that I want to be IRRESPONSIBLE. Not Continue Reading
A Curved Spine & A Curved Heart
Ryan has scoliosis, and I have another kind of OSIS. Ryan has had it since he was a baby. It’s a “C” curve to his left side. His OT and I noticed it as Ryan would lean to one side in his infant seat. Today, its not obvious to others unless in a bathing suit and swim shirt. You can see him lean and favor one side. And with his shirt off, well, it just makes me sad. He was first braced at a Continue Reading
Confession
Its TRUTH-TIME. I will share 10 ways I have blown it as a PWS mom. (I blow it as a “regular mom” all the time, too, by the way.) We, as parents and caregivers of a child or adult child with Prader-Willi syndrome, are all trying our best to provide what our special peeps need. We read, we research, we go to endless appointments, we read newsletters like this, we attend behavior training Continue Reading
Divine Appointments & Chili
Today’s post may not be full of a thousand words. But its packed chock full. Of heart. Of soul. Of spirit. Of joy. Of awe. Of humble appreciation. Of gratitude. Of humanity. What comes out of a simple invitation for hot chili on a cold winter day astounds me. A new family, new to us, and us, new to them, came over for lunch. The house was picked up. Bathroom cleaned. Table set. Flowers Continue Reading
Moses Makes Great Dinners In Heaven
Some years it hits me. Some years it does not. That post-Christmas blah. The let-down. On December 26th. Or even sometimes RIGHT after the Christmas morning of fun and frenzy and children’s delights are all over. Even though I don’t believe in Santa Clause or any Christmas magic per se, I have realized my adult self still has this longing and expectation at Christmastime. That somehow a Continue Reading
Still No Tears Over Sandyhook
I am surprised at my reaction to the Sandyhook tragedy. Or my lack of reaction, in terms of tears and sadness and heaviness. For anyone who knows me, I am a touchy-feely girl who cries at sappy commercials and gets choked up EASILY at others’ joys or woes. I FEEL. I LIKE TO FEEL. I go to movies that are contrived and emotional because I like to FEEL things. Last Friday I was in a meeting Continue Reading
Just Unwrap
A dear friend of mine says to her “special” daughter every morning as she looks into her chocolate eyes, “You are a gift.” It’s her daily mantra. Before the cares of the world set in, before the grind begins, before any reminders of the challenging journey she is on, before. She has chosen to remind herself, despite the hardships of having a disabled child, that her daughter is a gift. Continue Reading
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